Hi,

I’ve been beavering away doing some research over the last couple of weeks… you’ll be pleased to know, and have decided to write down my thoughts about what I’d like to do re: treatment and how I feel about it all, much easier than trying to explain on the phone.

The need to take some control over my own future is overwhelming, helpless is not a great place to be mentally when dealing with one’s mortality, I’m sure you must find this a lot. When I research, engage with people taking more of a role in their treatment and actually make steps to improve my own prognosis, or at least the way in which I deal with the physical and emotional side effects of the sea squirt do-do (Eribulin) that you keep plying me with… I feel better, pro-active, not like I’m sitting around just waiting to pop my clogs (Lockdown not helping).

I hope you know that I have the upmost respect and admiration for you guys, I’m not some moron who thinks just because I read “Bad Pharma” that I know it all, I really don’t have the foggiest idea, and am very much leaving the conventional, tried and tested medicine stuff in your very capable hands….. buuuuuuut, I’d like to go a little off-piste and would really love your support. It’s my life and my future and maybe a little integrated/repurposed drug stuff could help both physically and mentally.

As you know I have been talking to the Oncologists at RLHIM who are part of UCLH in London who have supplied me with a mistletoe (Viscum album L. extract) prescription and made some supplement and dietary suggestions. I also mentioned the Care Oncology Clinic ages ago and have been doing some more nosing around as I’ve met several actual people (not just online) using their protocol alongside their own targeted therapies and chemo-therapies, and they are doing pretty well with no nasty side effects.

https://careoncologyclinic.com/

How to Starve Cancer by Jane McClelland

I have contacted them, the initial costs are not astronomical and we could manage the ongoing prescription costs for the repurposed meds they recommend, again it’s not crazy money. They would need to see my most recent scan report and my bloods inc. liver & kidney info within the last 4-6 weeks.

I know your position, and I totally get that you work on an large scale evidence basis and I’d very much like to continue with my treatment with you and am still very interested in all the tried and tested routes, new advancements in immunotherapies, funky stereotactic radio-therapies and whatever else you have to chuck at me, I’m all yours… but could you humour me and my inner weird hippie and my not so inner scared little girl?

Thanks,

Joy (A pain in your arse)